Started pulmonary rehab this week. I don't think they read my reports because when I practically begged for help to lose weight I was told the longer it takes to get on the transplant list, the better because transplants only last about 5 years. They all stood there astonished when I said my prognosis is less than 2 at this point.
I'm doing the rehab (against Dr. Rao's advice) but I believe I need it. Having muscle problems from lack of exercise.
Can't do the treadmill or stairs because my SAT rate goes to low 80's and even high 70's when I do. Turning oxy up to 4 for other exercises and weights.
Getting frustrated big time.
Oh yeah, still doing between 1100 and 1200 calories a day and not losing a pound.
Can't afford a portable concentrator and the tanks are hurting my back and not lasting all day so I have to conserve and not use the oxygen when I'm sitting still.
