Nathan shared

So sick I can't keep my eyes open.
Ate lunch and threw up big time.
Dizzy. coughing, sweating and freezing.
Danny, Margo and Alex are sick too.

Went to the dry cleaners at 3:30 and they didn't even ask if I needed help. Carried it out for me.
Dragged my body into Hobby Lobby and bought Megan her "1st Christmas" ornament. Jason was born Jewish but doesn't practice but he likes the celebration of Christmas minus the religious part. Kind of weird but ok...

Chris had two sales then a cancellation. Home ten seconds after I was. Wonderful man kept me covered while I was freezing.

Did a little more research on Mixed Connective Tissue Disease. Can I find much more to be wrong with me?!
Deb was in my dreams last night. I told her I wasn't ready quite yet and she said she's be waiting to help. Weird but sort of comforting I guess.

Good week but dragging today

Nathan threw up last night and Lucas was sick too. I think they gave it to me because I ate dinner then threw up. Not fun.

Went shopping last night and got a turkey and lots of fruits and veggies. Going to make roasted veggies and some puff pastry desserts for the weekend.

Chris has been out SO late. Almost 1 AM on Wed. 11 on Thursday and 9:30 tonight and nothing is selling.

My damn car keeps needing antifreeze. Going to have to do a radiator transplant soon. lol Phone keeps saying No Service or Emergency Calls Only AND we thought the coffeemaker died this morning. Turns out it just popped the outlet. Chris picked up a new Cuisenart brewer and grinder at Costco.

Read a whole bunch on lung transplant. If I had $225,000 I could buy new live donor lungs through a company in Sun Valley CA. Says donors are from foreign countries. How sick is that!?!? Take advantage of poor people whose countries don't regulate transplantation.

Told mom what is going on and she went out and signed a donor card. Poor thing is SO worried about me. I feel horrible, Christa told me she fully understood my situation but it didn't hit her until she and Chris talked about it on Wed. so she spent the night crying. I feel so bad for them to be that worried for me. I don't know what to say to make them feel better or not worry so much. Whatever happens happens.

this sucks, this sucks, this sucks, this sucks

Saw Marks today and got the official word that lung transplant is my only option. And hopefully it is an option.
They will check out my insurance and hopefully not get a rejection. The new super sized, super expensive insurance won't start until Jan. 1st.

Then it is on to the transplant team to see if I can even qualify. He says there will be a lot more medical tests along with them looking at our financial situation (not good due to tons of medical bills from Chris's back which was the result of that damn accident... I wonder if I can shoot the ass who hit us) making sure I have support to get to appointments and I get to see a shrink to make sure I have the right attitude and will comply with all requests. Then they will determine if I can get new lungs.

My weight and financial situation are hinderences but my age, activity leval, wish to keep working and attitude are on my side.
Chris pushed a bit and we got the answer that without a transplant my prognosis is 2 to 3 years. I refuse to accept that.

Dr Levine (who is patient rated the highest along with Marks) is who I will be referred to if the insurance approves San Antonio for the transplant. If not Dallas or Houston may be a possibility. I HATE health insurance companies can control needed care.

Talked with Sharon and told her what was going on. I figured I had to be totally honest because she knows enough to know if I'm hiding stuff from her. Going to go with the "I need a transplant" without the "without it I have only a few years to live" with everyone else. Hopefully they won't figure it out. I hate to stress the girls. They don't need to worry.

I just really want to make this easier on Chris. Gotta find him a new wife. LMAO He thinks I am kidding, I am but I;m not. I love him and want someone to take care of him when I am gone.

On a lighter note, I maxed out my debit card and bought a Naturaworld pillow for $60. It feels like down but is latex filled. Praying I can sleep in bed and not wake p hacking away from using down pillows. A new mini comforter is next... Maybe I'll make an anti-die quilt. lol

Forgot to ask Brandy about Jasons interview.
Ann is supposed to upload pics from her camera to the computer but hasn't done it yet. I can't wait to see the kids dressed up for a wedding.

Christa, Ro and the girls are coming for Thanksgiving. Ro is bringing a ham he got from work and we'll probably order a turkey from HEB so I don't have to cook. Making dressing and mashed potatoes wheather I feel like it or not. Going to get one of those great apple pies from Costco that Greg bought us last year. Adore that guy. He is so sweet when he comes over. He always asks how I am and is truly concerned.

Dragging BIG Time

Did a test, I slept in bed last night and shouldn't have. I think Marks is right about getting rid of the down pillows. Woke up with tons of flem again.
Coughed my way downstairs and then collapsed in the recliner.
Brye came over just as I finished losing my mind. We planned to go to Magnolia Haus for breakfast.

Great breakfast. That place is fantastic. Had to wait for almost an hour and, of course, I brought the oxygen tank that was only half full so rather than going to Target when we were done we had to come back to the house for oxygen. Can't walk around without it anymore unless I go at a snails pace and I can't risk my SAT rate going down as much as it has been with the least little activity.

Came home and decided we'd take a little nap (she's been working like crazy lately and didn't sleep well last night either)
Woke up at 3:30 and Brye was gone. She had to work at 6:00. Called her to apologize for falling asleep. She said I was snoring like crazy which I do only when I'm really tired.

Chris got in at 5:00 and then had to run out for a 6:00 appt. He is dragging big time too. Iced his ankle for a bit and then back on the road again.

I know Marx said I'd have flu like symptons from the Reclast but this is kicking my ass big time.

I REALLY need to get out and get some stuff for BC. Need a TX postcard, TX ornament and some greeting cards. Being so fatigued is a royal pain in the ass.

I keep thinking of all Chris has been doing for me and I have to get more energy so I can do for him. The poor guy is working 12 to 16 hours a day 6 days a week. I know we need the money but he needs things to slow down so he can heal his ankle and recharge.

Talked with Brandy and Jay has a second interview for a transfer and promotion. Looks like Dallas, Houston or Pheonix might be a real possibility for them. I'd love to be able to see Megan easier.

Ann, Glenn and the kids are in DC this weekend. Dr. Uncle Mike is getting married and AJ and Gareth are in the wedding. Waiting for pics.

Reclast Infusion

Had the Reclast infusion yesterday morning and today I feel like I have the flu minus the congestion. Dizzy and ache all over.
My INR was 4.6 so I'm off the coumsdin for three days. They called in a new script for me to Medco.
Bruises are almost gone from the surgery.

Chris is in Corpus for a few days. Sold a $17,000 kitchen remodel last night.

Talked with Sharon and she gave me the number for a respritory rehab program at Baylor that is supposed to be one of the best. I'll talk to Marks about it next week.

Seeing Rao on Thurs after I FINALLY have the Reclast infusion at Marx's office that morning. I have to remember to ask about the weird blistering.

My left nipple is still hurting. I think maybe Malve hit a nerve when he did the biopsy. The incision is healing wonderfully. Hardly hurts at all but my nipple is killing me.

Didn't sleep well again last night. Up from about 12:30 to 2:00. Up at 7:00.

Chris had a 10AM appt then home to watch football. 5PM appt. near home and off tomorrow. He saw Stanley and is in a walking boot for 6 to 8 weeks for the tendopothy in his right ankle. Paced too much in sneakers while I was in the hospital.

I talked with Miss Æmilia and she was concerned that I'm still working. She asked how I was feeling and I told her I was fine. She replied "Grandma, I don't believe you." I adore that child. She is so adult it is funny. I miss her and Gareth so much. I wish they lived closer or that we could take living in PA.

Danielle is coming on Tuesday; maybe... she texts me at least three times changing days every time she comes. I think it is funny. I always tell her just come when you can. I don't care as long as the dusting and vacuuming gets done every few weeks.

here is a picture of Miss Megan that made me smile today:

The boys and I voted on Wed (Obama) so we don't have to worry about that this week.
Halloween wasn't as much fun as usual because I didn't have a stash of kids books to give out. I have to start collecting for next year.

Spent the evening on the porch giving out candy to little princeses and super heros. Also watching to make sure that Mr Pediman (Jay from across the street) didn't show up. That man gives me the creeps.

Good week but hard day

I had a really good week. I'm off the Lovenox again. INR is 2.3 but my ankle is a mess from dropping an almost empty jar on it. I can't believe how black and blue it is.

Had a very hard night sleeping. I took 15 mg of Norco which should have made me pain free and sleepy but it didn't.

Got out of bed at 8:30 with a headache and alternate between the sweats and freezing. The bottom of my feet are even wet and it is 73 degrees in here!

Also getting those weird leg blisters again but in a higher place on the inside of my left calf. Bigger than before with some little tiny ones pluse my regular spot just above my right inside ankle.

I really feel horrible today. Weak and in a bad headspace.