No other way to put it.
I got the new, larger concentrator last week. I really believed the being able to turn it up to 8 liters to walk around would help but it doesn't. I no longer feel like I want to pass out if I stand up but it hasn't helped nearly as much as I'd hoped.
SAT rate falls to the low 70's if I move at more than a crawl.
I should be getting a scooter this week. Hopefully insurance won't drag it out too long.
Sunday, March 30, 2014
Monday, March 24, 2014
Went to the movies! BIG mistake!
On Thursday Sally picked me up and we went over to the Regal Theaters on Vance Jackson & DeZavala to see Saving Mr. Banks. I left my second canister in the car assuming I'd need just the one as long as I sat still after recovering from the stroll in. Wrong!
From the minute we sat down I had to keep turning it back up from 3 to 5 lpm (and I wasn't saying a word or moving at all) Sally had to go out and retrieve my other bottle. Wicked time getting to the car and then at least a half hour to recover once I got home and had the continuous flow set as high as possible. for the past few days I use the big unit and a canister also when I have to move around. Good temp. solution.
Called Providacare again and they said they didn't have the orders for a bigger concentrator. Called Susan at Dr. M's. Her comment was a very droll "They Lied." Today I called everyone again and as of noon Jerry is on his way to deliver the larger concentrator. Still not sure how the getting out of the house thing will work but we'll deal with that later.
Seeing Marks later this afternoon. I don't think I'm "sick" right now. I just think this is my new low.
On Thursday Sally picked me up and we went over to the Regal Theaters on Vance Jackson & DeZavala to see Saving Mr. Banks. I left my second canister in the car assuming I'd need just the one as long as I sat still after recovering from the stroll in. Wrong!
From the minute we sat down I had to keep turning it back up from 3 to 5 lpm (and I wasn't saying a word or moving at all) Sally had to go out and retrieve my other bottle. Wicked time getting to the car and then at least a half hour to recover once I got home and had the continuous flow set as high as possible. for the past few days I use the big unit and a canister also when I have to move around. Good temp. solution.
Called Providacare again and they said they didn't have the orders for a bigger concentrator. Called Susan at Dr. M's. Her comment was a very droll "They Lied." Today I called everyone again and as of noon Jerry is on his way to deliver the larger concentrator. Still not sure how the getting out of the house thing will work but we'll deal with that later.
Seeing Marks later this afternoon. I don't think I'm "sick" right now. I just think this is my new low.
Thursday, March 13, 2014
Been in the cottage for 4 months now and I'm adjusting to my new normal.
Can't walk 5 feet without getting out of breathe. Dr Marks ordered me a concentrator that will go up to 10 lpm. I'm currently on 5 all the time now except when filling canisters. My car wouldn't start last week so i walked to the office slowly. Coming back I saw "glitter" of white light as I practically crawled home. No more walks for me. Dr. Ordered a scooter but insurance reimburses almost nothing.
We are so in debt it is killing us. Finally got approval for the Adcirca so that is a $2000 headache taken care of but The Vest is going back because they've decided not to approve it for home use. I can get 7 treatments a month. vs twice a day. Chris had to have a tooth pulled. Borrowed $500 from Sharon. I've cut down on dr. Appts because of the $35 co-pays.
Met Fanny who moved in behind us. (Chris is still here and probably not going to Alburqueque) she checks on me often. Brought over some great cabbage and potatoes last week.
Stan is here visiting Ann this week. She and the kids stayed over Tues night then they took me to Balance to get pinned. Chris is in Corpus for the week.
Yard sale on Sat. Sally & Jason will set up so they can move easier next year.
Can't walk 5 feet without getting out of breathe. Dr Marks ordered me a concentrator that will go up to 10 lpm. I'm currently on 5 all the time now except when filling canisters. My car wouldn't start last week so i walked to the office slowly. Coming back I saw "glitter" of white light as I practically crawled home. No more walks for me. Dr. Ordered a scooter but insurance reimburses almost nothing.
We are so in debt it is killing us. Finally got approval for the Adcirca so that is a $2000 headache taken care of but The Vest is going back because they've decided not to approve it for home use. I can get 7 treatments a month. vs twice a day. Chris had to have a tooth pulled. Borrowed $500 from Sharon. I've cut down on dr. Appts because of the $35 co-pays.
Met Fanny who moved in behind us. (Chris is still here and probably not going to Alburqueque) she checks on me often. Brought over some great cabbage and potatoes last week.
Stan is here visiting Ann this week. She and the kids stayed over Tues night then they took me to Balance to get pinned. Chris is in Corpus for the week.
Yard sale on Sat. Sally & Jason will set up so they can move easier next year.
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