Doing better today. Saw Dr Rao. She was not happy that neither Malve nor Marks consulted with her before the biopsy. I'd called her office the day it was scheduled to let them know and to change my next appointment but she doesn't have that in her notes.My INR is 1.6 so I have to stay on the Lovenox for the full ten days. Seeing her on Thursday after staple removal.
She also said that because she was away when I was first started on the blood thinners there were tests that should have been done beforehand but now we'll have to wait until I'm off the coumadin ~ probably in about 5 months. Two tests were run for abnormalaties but both came back negative. I have to ask Chris if he remembers exactly what she said about that.
Stopped at Whole Foods. Got a great cup of coffee and picked up some Indian take-out, chips, a sandwich for Tope, pickles and some good cheese for Mom, who isn't coming now because she couldn't find a ticket for under $600.
Also stopped at Copenhagen to show Chris the chairs I like. He didn't like, or I should sa, doesn't think I should get the one I'd like.
Home to play with Meg and a nap for him since he didn't sleep well last night.
Margo read his MRI. No tear but some tendonopthy and bursitis.
Monday, October 22, 2012
Saturday, October 20, 2012
MRI
MRI for Chris's ankle. So frustrated I could scream. Between that and the non help today. I'll ask Margo to read it.
Brandy helps with what she thinks we need not what we say we need or ask for.
We eat wrong. Wheat rolls bought because they are better for us. They'll go into the garbage. I shouldn't use milk in a recipe that calls for milk because it is bad for me. No coffee, it restricts the blood flow.
I shouldn't wash my hair in the kitchen sink where i barely have to bend over. I should contort myself to do it in the bathroom.I kept having to ask for more shampoo because I was using too much. Actually I shouuldn't be doing it at all. So what if my head itches from five days of sweat. I want to sob because NOTHING I say makes her happy.
Chris dumped the Perier water because it was flat. Shouldn't have done that.
We have a lot of alachol in the garage fridge. Ice cream too!
Having someone help is great if they can get you what you ask for or do what you need done but hesitating because what you ask for is "wrong" is just too frustrating. Easier to be alone and cope. I've made all but one meal since getting home. Chris cant walk and moans constantly. He offers to get up but moans the whole time. He won't see a rhumotologist even though Dr Curtis told him his shoulder was probably destroyed because of RA (and most likely his other tears of tendons were a result of something like that too. He tears too often from doing NOTHING.
Brandy helps with what she thinks we need not what we say we need or ask for.
We eat wrong. Wheat rolls bought because they are better for us. They'll go into the garbage. I shouldn't use milk in a recipe that calls for milk because it is bad for me. No coffee, it restricts the blood flow.
I shouldn't wash my hair in the kitchen sink where i barely have to bend over. I should contort myself to do it in the bathroom.I kept having to ask for more shampoo because I was using too much. Actually I shouuldn't be doing it at all. So what if my head itches from five days of sweat. I want to sob because NOTHING I say makes her happy.
Chris dumped the Perier water because it was flat. Shouldn't have done that.
We have a lot of alachol in the garage fridge. Ice cream too!
Having someone help is great if they can get you what you ask for or do what you need done but hesitating because what you ask for is "wrong" is just too frustrating. Easier to be alone and cope. I've made all but one meal since getting home. Chris cant walk and moans constantly. He offers to get up but moans the whole time. He won't see a rhumotologist even though Dr Curtis told him his shoulder was probably destroyed because of RA (and most likely his other tears of tendons were a result of something like that too. He tears too often from doing NOTHING.
Friday, October 19, 2012
Long Day
Brandy is really helping us out. She went shopping tonight and then made some great salads. It is so nice to have Megan here. She is constantly happy and laughing.
Talked to mom and Sharon. Mom is probably coming next week after Bran leaves. Ann and the kids are coming after Dr. Mikes wedding on Nov. 10th in DC and staying for Thanksgiving.
Really tired and needing pain meds today.
Talked to mom and Sharon. Mom is probably coming next week after Bran leaves. Ann and the kids are coming after Dr. Mikes wedding on Nov. 10th in DC and staying for Thanksgiving.
Really tired and needing pain meds today.
Black & Blue!
My arms are a mess. The nurse who got me ready for surgery couldn't get the IV in then the one they put in my right arm went bad.
Then the new one in the left arm fell out. What a mess.
On a good note the Lovenox shots in the stomach don't seem to be bruising so bad this round.
Thursday, October 18, 2012
Hmmmm
Apparently I was coherent enough to make a journal entry but I don't remember doing it or getting out of bed on Tuesday at all. .
I was moved out of the ICU around midnight and over to what they called a step down unit on the 4th floor. Had a roommate who has diabetes and had a liver infection. She went home on Wednesday. Her name is Sharon and she calles her liver Cynthia. LOL
Chris, Brandy, Megan and Brye spent most of Wednesday with me and I remember little of the day. I do remember my 3rd IV fslling out in the morning and I refused to let them put in another. Got 10mg of Norco around 10AM and another 10 in the evening. Nothing for pain on Thursday because it only hurt when I moved.
Saw both Malve and Marks on Wed (don't remember Tues at all) and they agreed I could stay until Thurs to get some good rest. Great bed that allowed me to sit up and sleep. .
Little bit of a rough night. They moved someone in at about midnight and back out by early morning. Of course they turned on all the lights and the tv. Even the Norco didn't keep me asleep. .
Released around 2:00. Chris dropped me off and went to see Dr Stanley. He probably tore his achalies tendon. So what's new... Spent the afternoon sitting outside listening to Brandy tell me I HAD to keep my oxygen on even lf my SAT rate was 99.
I was moved out of the ICU around midnight and over to what they called a step down unit on the 4th floor. Had a roommate who has diabetes and had a liver infection. She went home on Wednesday. Her name is Sharon and she calles her liver Cynthia. LOL
Chris, Brandy, Megan and Brye spent most of Wednesday with me and I remember little of the day. I do remember my 3rd IV fslling out in the morning and I refused to let them put in another. Got 10mg of Norco around 10AM and another 10 in the evening. Nothing for pain on Thursday because it only hurt when I moved.
Saw both Malve and Marks on Wed (don't remember Tues at all) and they agreed I could stay until Thurs to get some good rest. Great bed that allowed me to sit up and sleep. .
Little bit of a rough night. They moved someone in at about midnight and back out by early morning. Of course they turned on all the lights and the tv. Even the Norco didn't keep me asleep. .
Released around 2:00. Chris dropped me off and went to see Dr Stanley. He probably tore his achalies tendon. So what's new... Spent the afternoon sitting outside listening to Brandy tell me I HAD to keep my oxygen on even lf my SAT rate was 99.
Tuesday, October 16, 2012
Had the biopsy
Dr said my lung looks abnormal but that is what he expected. Pathology reports in three to six days.
I hurt like crazy. Morphine ever two hours and still in ICU on Tuesday night.
I was ok until I got up to go to the bathroom. Now I hurt all over.
Sunday, October 14, 2012
Quiet Sunday
Surgery tomorrow.
Brandy is here with Megan. Chris's appointment ended up being canceled just as I was turning out onto 1560.
Poor Megan HATES the truck. Too loud for her.
Chris and Brandy went shopping and I had Megan asleep on me when Tanya came over to borrow an egg. Her kids LOVED Megan and stayed to play.
Brye stopped to meet Megan.
I wish Brandy and Chris would stop telling me to put my oxygen on. I hate the damn canella and I'm fine when sitting still. I just want a little time without the plastic up my nose. Making me a little crazy.
Brandy is here with Megan. Chris's appointment ended up being canceled just as I was turning out onto 1560.
Poor Megan HATES the truck. Too loud for her.
Chris and Brandy went shopping and I had Megan asleep on me when Tanya came over to borrow an egg. Her kids LOVED Megan and stayed to play.
Brye stopped to meet Megan.
I wish Brandy and Chris would stop telling me to put my oxygen on. I hate the damn canella and I'm fine when sitting still. I just want a little time without the plastic up my nose. Making me a little crazy.
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