Super Lazy Sunday

Slept until 10:00 then until 1:20! I can't believe I did that. I'm am dragging so much!
Got up, took a shower and came downstairs to plant my ass in my recliner.
Looked at Pinterest and BC for a few hours each. I pinned a bunch of things I'll never get around to doing but it makes me happy to have the collection to look at.
I REALLY need to start sewing again. We need to move so I can get my stuff organised and out of boxes.
Read a bit of "The Woman Who Went To Bed For A Year". Cute book.
Ate more leftover turkey then brisquit for dinner. Roasted some olive oil potatoes for Tope. Made a great latte with the frother Margo bought me. Coffee, pumpkin spice and cinnamon.
Have to call Odette tomorrow for different antibiotics. This one isn't working.
Watching NCIS instead of the football that has been on all day

Walgreens

to pick up Musinex(sp?)Zyrtek, Stetson and some chocolate, $81 later I stopped at Starbucks and spent another $10 for a frappe for Tope and a pumpkin latte for me. I must be losing my mind to throw money away like that but I feel like crap and don't care.
Neighbors to the right have a beautiful sparkley yard
to rival what we usually do and Tim & Tanya have a "Tiny" blow up Christmas dog. It can rival the real Tiny!

Chris wants to get a Christmas tree even though I want to skip it this year. He said I could decorate it any way I want and he won't give me a hard time. Mom agreed with me... he thinks I'm dying. The boy does not give up the remote or the Christmas tree without a fight. lol

Ok Thanksgiving. Found a new hospital to use.

Christa made a great ham, potato, stuffing, green bean dinner. Brye made her cucumber salad and I roasted a turkey upside down. Great gravy drippings. Will do it that way again. Pie for dessert.

We finally convinced Chris to go to get checked out around 4:30, after he moaned and didn't get up out of his chair all day. He kept saying he didn't want to ruin our day but it was obvious he was in a lot of pain. We were ALL frustrated with him

I was still wheezing pretty bad so B took him. She was looking for the TX Med Clinic she said is on Westover Hills. Not sure there is even one over there. Found a new Baptist Emergency Hosrital on 151 that opened last week.

They did a CT scan of his upper body and he just had a bruised chest and enflamed tendon in his elbow. Ro's boss couldn't give him the day off so they bathed the kids, took showers and left about 7:00. B had to work at 4AM so I went looking for the hospital. Home around 8:00.

Spent today doing nothing but looking at BC and Pinterest and playing Spider Solitare. Chris talked to the insurance company.

Will life EVER calm down? I want to have a major breakdown but if I cry I'll choke to death. And I wish I was kidding.
Tomorrow has to be better.

Adding pics I like...

Can It Get Much Worse?

Started out an ok day. The cortisone shot helped the lungs a bit and I'm not wheezing. Took the guys to Gymboree then came home, put them in for a nap, straightened the kitchen then Danny told me to go home. Off Friday and maybe watch the kids one night next week.

Stomach flu for Chris and he totaled the car on the way home because of it. He canceled his last appointment and was on his way home because he kept throwing up. Made it almost to Braun and totaled the car. Pushed one guy into another and neither car had much damage at all. No tickets. Probably because he was hurt. Nice people all around.

Christa and Ro had taken the Caddy to HEB and I was watching the kids. They came home and Ro and I went to get Chris. Ro was great and loaded and unloaded the truck. Don't know how all that stuff was in the Fit.

Got home where Chris couldn't stop throwing up. Need to get the carpets cleaned soon as he couldn't move from his chair. He refuses to go to get checked because he says the flu will confuse the results. Not happy about that at all.

Saw Odette (Mark's PA)

I have bronchitis. Got a shot in the ass and a script for a 7 day antibiotic Levofloxacin 500mg. Wheezing ang coughing away.

Stopped at the Sears office to pick up the rest of the mac and cheese from the Thanksgiving lunch.
Went to the Helotes PO to visit my miserable clerk Sonia (and mail to Ireland and San Diego) over to picked up script at HEB then got home maybe two minutes before Chris whose 1 o'clock appt. was a bust. Waste of gas to go over to 35.

Fell asleep until 3:30 when Chris left for his 4:00. I'm just so much fun to be around lately.

Facetimed with Meg. Too cute.

Made stuffing because I'd done the bread last week before I knew Christa was cooking.

Skyped with Ann, AJ and Gareth. AEmilia read "A Path In The Forest" to me.

The shot is helping. I feel a little better.

Still dragging. Poor Alex barely lifted his head off the couch today and Nathan seems a bit better but still has no energy. We were on the couch watching The Polar Express and Nathan was sitting to my right. Alex was next to him and sort of kicked him. Having no energy Nathan watched then quietly said to me "Miss Cyn, look at what he's doing." No arguing or wrestling around. Just no energy. I feel so bad for them. They have never been sick before and this thing is just kicking butt.
Poor Margo had to work on a new system. She said they were backlogged 400 films. Danny went to the store then to the Ronald McDonald House, where he was supposed to volunteen today but he just couldn't. Everyone spent the weekend on the couch.
Margo texted me at 9 and told me to take tomorrow off. She is working 1 to 9 and Danny will watch the boys in the afternoon.

Danny let me leave when he got home at 4 and I've planted my ass in my chair and barely moved except to make mac & cheese for Tope to take to work tomorrow.

Talked to Ann today. Æmilia wants a village for Christmas so she will get the houses and Gareth will get the ships and lighthouses. The other things Gareth told Ann he wants for Christmas are applesauce and Cuties oranges! lol

I just hope Brandy doesn't change her mind about wanting my "clutter" for Megan.
Doing pretty good at clearing out my extra "stuff."

Gotta do a will even though I have nothing. The girls know that but it will make probate go faster if I have one. Took a picture of all my watches and jewelry. None is worth much but I put names next to each one so Chris will know who gets what. Kathleen is the only one who I have nothing for. Æmilia, Megan, Ariana, Evelyn, Emma and Abby get the jewelry and their mom's get my watches. Buying another cheapie diamond ring at Kays tomorrow so each granddaughter has a ring from me. One more to go to have enough. I love anniversary rings. Wish they'd do one more squared off or emerald cut.

On another note I did a "Long Island Medium" marathon. (Woohoo no NCIS for a day or so) Sounds crazy but recently I've seen both Deb and Grandma H who have both told me they are here but it's not time yet. Maybe it's because I've been so sick.
Ok back to LI Med. I told Chris I want to make an appointment for him (or me if I'm lucky enough to be here) in about 4 years. He doesn't believe in it but I told him I'll have her mention something he couldn't deny was from me. I've also told him I'll static up his football games if I can. lol Have to find the boy a new wife so he isn't alone. I love that man and don't want him to be lonely. He thinks I'm crazy. Maybe I am but it's better than whining and complaining.

Think I'll add a pic so I have something to look at when I review this missive.

Lay Down Sally

Chris asked me to make some CD's of James Taylor so I can have my favorite music when (if) I get the lung transplant. I'm saying it's my funeral music.

I've always said I don't want a funeral. I want to be cremated and made into a diamond ($4500 average) Well, I suddenly remembered I forgot to include some Eric Clapton. Chris responded "What do you want? "Lay Down Sally"? I can't stop laughing. I adore that man.

Nathan shared

So sick I can't keep my eyes open.
Ate lunch and threw up big time.
Dizzy. coughing, sweating and freezing.
Danny, Margo and Alex are sick too.

Went to the dry cleaners at 3:30 and they didn't even ask if I needed help. Carried it out for me.
Dragged my body into Hobby Lobby and bought Megan her "1st Christmas" ornament. Jason was born Jewish but doesn't practice but he likes the celebration of Christmas minus the religious part. Kind of weird but ok...

Chris had two sales then a cancellation. Home ten seconds after I was. Wonderful man kept me covered while I was freezing.

Did a little more research on Mixed Connective Tissue Disease. Can I find much more to be wrong with me?!
Deb was in my dreams last night. I told her I wasn't ready quite yet and she said she's be waiting to help. Weird but sort of comforting I guess.

Good week but dragging today

Nathan threw up last night and Lucas was sick too. I think they gave it to me because I ate dinner then threw up. Not fun.

Went shopping last night and got a turkey and lots of fruits and veggies. Going to make roasted veggies and some puff pastry desserts for the weekend.

Chris has been out SO late. Almost 1 AM on Wed. 11 on Thursday and 9:30 tonight and nothing is selling.

My damn car keeps needing antifreeze. Going to have to do a radiator transplant soon. lol Phone keeps saying No Service or Emergency Calls Only AND we thought the coffeemaker died this morning. Turns out it just popped the outlet. Chris picked up a new Cuisenart brewer and grinder at Costco.

Read a whole bunch on lung transplant. If I had $225,000 I could buy new live donor lungs through a company in Sun Valley CA. Says donors are from foreign countries. How sick is that!?!? Take advantage of poor people whose countries don't regulate transplantation.

Told mom what is going on and she went out and signed a donor card. Poor thing is SO worried about me. I feel horrible, Christa told me she fully understood my situation but it didn't hit her until she and Chris talked about it on Wed. so she spent the night crying. I feel so bad for them to be that worried for me. I don't know what to say to make them feel better or not worry so much. Whatever happens happens.

this sucks, this sucks, this sucks, this sucks

Saw Marks today and got the official word that lung transplant is my only option. And hopefully it is an option.
They will check out my insurance and hopefully not get a rejection. The new super sized, super expensive insurance won't start until Jan. 1st.

Then it is on to the transplant team to see if I can even qualify. He says there will be a lot more medical tests along with them looking at our financial situation (not good due to tons of medical bills from Chris's back which was the result of that damn accident... I wonder if I can shoot the ass who hit us) making sure I have support to get to appointments and I get to see a shrink to make sure I have the right attitude and will comply with all requests. Then they will determine if I can get new lungs.

My weight and financial situation are hinderences but my age, activity leval, wish to keep working and attitude are on my side.
Chris pushed a bit and we got the answer that without a transplant my prognosis is 2 to 3 years. I refuse to accept that.

Dr Levine (who is patient rated the highest along with Marks) is who I will be referred to if the insurance approves San Antonio for the transplant. If not Dallas or Houston may be a possibility. I HATE health insurance companies can control needed care.

Talked with Sharon and told her what was going on. I figured I had to be totally honest because she knows enough to know if I'm hiding stuff from her. Going to go with the "I need a transplant" without the "without it I have only a few years to live" with everyone else. Hopefully they won't figure it out. I hate to stress the girls. They don't need to worry.

I just really want to make this easier on Chris. Gotta find him a new wife. LMAO He thinks I am kidding, I am but I;m not. I love him and want someone to take care of him when I am gone.

On a lighter note, I maxed out my debit card and bought a Naturaworld pillow for $60. It feels like down but is latex filled. Praying I can sleep in bed and not wake p hacking away from using down pillows. A new mini comforter is next... Maybe I'll make an anti-die quilt. lol

Forgot to ask Brandy about Jasons interview.
Ann is supposed to upload pics from her camera to the computer but hasn't done it yet. I can't wait to see the kids dressed up for a wedding.

Christa, Ro and the girls are coming for Thanksgiving. Ro is bringing a ham he got from work and we'll probably order a turkey from HEB so I don't have to cook. Making dressing and mashed potatoes wheather I feel like it or not. Going to get one of those great apple pies from Costco that Greg bought us last year. Adore that guy. He is so sweet when he comes over. He always asks how I am and is truly concerned.

Dragging BIG Time

Did a test, I slept in bed last night and shouldn't have. I think Marks is right about getting rid of the down pillows. Woke up with tons of flem again.
Coughed my way downstairs and then collapsed in the recliner.
Brye came over just as I finished losing my mind. We planned to go to Magnolia Haus for breakfast.

Great breakfast. That place is fantastic. Had to wait for almost an hour and, of course, I brought the oxygen tank that was only half full so rather than going to Target when we were done we had to come back to the house for oxygen. Can't walk around without it anymore unless I go at a snails pace and I can't risk my SAT rate going down as much as it has been with the least little activity.

Came home and decided we'd take a little nap (she's been working like crazy lately and didn't sleep well last night either)
Woke up at 3:30 and Brye was gone. She had to work at 6:00. Called her to apologize for falling asleep. She said I was snoring like crazy which I do only when I'm really tired.

Chris got in at 5:00 and then had to run out for a 6:00 appt. He is dragging big time too. Iced his ankle for a bit and then back on the road again.

I know Marx said I'd have flu like symptons from the Reclast but this is kicking my ass big time.

I REALLY need to get out and get some stuff for BC. Need a TX postcard, TX ornament and some greeting cards. Being so fatigued is a royal pain in the ass.

I keep thinking of all Chris has been doing for me and I have to get more energy so I can do for him. The poor guy is working 12 to 16 hours a day 6 days a week. I know we need the money but he needs things to slow down so he can heal his ankle and recharge.

Talked with Brandy and Jay has a second interview for a transfer and promotion. Looks like Dallas, Houston or Pheonix might be a real possibility for them. I'd love to be able to see Megan easier.

Ann, Glenn and the kids are in DC this weekend. Dr. Uncle Mike is getting married and AJ and Gareth are in the wedding. Waiting for pics.

Reclast Infusion

Had the Reclast infusion yesterday morning and today I feel like I have the flu minus the congestion. Dizzy and ache all over.
My INR was 4.6 so I'm off the coumsdin for three days. They called in a new script for me to Medco.
Bruises are almost gone from the surgery.

Chris is in Corpus for a few days. Sold a $17,000 kitchen remodel last night.

Talked with Sharon and she gave me the number for a respritory rehab program at Baylor that is supposed to be one of the best. I'll talk to Marks about it next week.

Seeing Rao on Thurs after I FINALLY have the Reclast infusion at Marx's office that morning. I have to remember to ask about the weird blistering.

My left nipple is still hurting. I think maybe Malve hit a nerve when he did the biopsy. The incision is healing wonderfully. Hardly hurts at all but my nipple is killing me.

Didn't sleep well again last night. Up from about 12:30 to 2:00. Up at 7:00.

Chris had a 10AM appt then home to watch football. 5PM appt. near home and off tomorrow. He saw Stanley and is in a walking boot for 6 to 8 weeks for the tendopothy in his right ankle. Paced too much in sneakers while I was in the hospital.

I talked with Miss Æmilia and she was concerned that I'm still working. She asked how I was feeling and I told her I was fine. She replied "Grandma, I don't believe you." I adore that child. She is so adult it is funny. I miss her and Gareth so much. I wish they lived closer or that we could take living in PA.

Danielle is coming on Tuesday; maybe... she texts me at least three times changing days every time she comes. I think it is funny. I always tell her just come when you can. I don't care as long as the dusting and vacuuming gets done every few weeks.

here is a picture of Miss Megan that made me smile today:

The boys and I voted on Wed (Obama) so we don't have to worry about that this week.
Halloween wasn't as much fun as usual because I didn't have a stash of kids books to give out. I have to start collecting for next year.

Spent the evening on the porch giving out candy to little princeses and super heros. Also watching to make sure that Mr Pediman (Jay from across the street) didn't show up. That man gives me the creeps.

Good week but hard day

I had a really good week. I'm off the Lovenox again. INR is 2.3 but my ankle is a mess from dropping an almost empty jar on it. I can't believe how black and blue it is.

Had a very hard night sleeping. I took 15 mg of Norco which should have made me pain free and sleepy but it didn't.

Got out of bed at 8:30 with a headache and alternate between the sweats and freezing. The bottom of my feet are even wet and it is 73 degrees in here!

Also getting those weird leg blisters again but in a higher place on the inside of my left calf. Bigger than before with some little tiny ones pluse my regular spot just above my right inside ankle.

I really feel horrible today. Weak and in a bad headspace.